- CureHD Foundation -
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| Robert Bishop Introduction HD family tree Why I do this Family photos What is HD? Definition The HD secret How many have HD The cruelest illness The HD nightmare My experience Other experiences HD research Hope for a cure North America How can I help? Make a donation Contact the media Ask legislators... News & events Articles & stories I need your help Contact info CureHD Foundation CureHD sponsors HD web sites Other info Content © 1999-2009 |
Why haven't I heard about
HD? Although HD is a very compelling illness, it's not very well known because families who are affected by HD are often afraid to speak out. Genetics is relatively new and our society is not very well suited to protect individuals who are predisposed to get a terminal illness, nor to assist those who already have it. I don't blame people for their fears. I've personally experienced an unbelievable amount of discrimination and judgment which almost buried our family, both financially and otherwise. But for some reason, we were saved from all of that. Now I have a unique opportunity to assist in finding a cure so that families with HD (including my children) can have a chance at something other than life-long misery. |